How can we help with your research?
A principal objective of the Carolinas Collaborative is to provision clinical data to healthcare researchers to facilitate advancement and innovation in research.
Researchers wishing to obtain more information about the resources, services, or data available through the Carolinas Collaborative are encouraged to request a services consult.
If you have more general questions or would like to learn more about the Carolinas Collaborative, we invite you to browse our frequently asked questions below.
Frequently Asked Questions
What is the Carolinas Collaborative?What institutions are represented in the Carolinas Collaborative?
What is a federated data network?
What services are available from the Carolinas Collaborative?
- Consults – Consults can be requested by investigators interested in learning more about the Collaborative and the request process.
- Count Requests – Counts of patients can be requested to determine feasibility of projects within the Collaborative. The Carolinas Collaborative encourages investigators to query the data warehouse at their home institution and/or request Carolinas Collaborative counts before proceeding with a dataset request. These steps will help expedite the dataset request process significantly.
- Dataset Requests – Identified, limited, or deidentified datasets can be requested through the Collaborative, with appropriate approvals from the Carolinas Collaborative and an Institutional Review Board (IRB).
- Collaborator Requests – Requests can be made by investigators wishing to find collaborators at sites within the Carolinas Collaborative
How can I register for an account to submit a request? What if I forget my password?
What data are available in the Carolinas Collaborative Common Data Model (CDM)?
Does the Carolinas Collaborative data network contain historical data?
Who can request counts or dataset from the Carolinas Collaborative? Investigators at UNC must be faculty or EPA non-faculty, but do not need to complete a local i2b2 query prior to submitting requests. In certain circumstances, investigators will not be able to view unmasked counts or receive data from other institutions unless a collaborator from that institution is represented on the study team. For example, if you’d like to request data from Duke and UNC, your study team must include co-investigators from both Duke and UNC. These requirements vary across sites and depending on the data requested. Carolinas Collaborative can help you find collaborators. Carolinas Collaborative highly encourages investigators to work with collaborators from other sites.
How can I query the data warehouse of my home institution? Where do I go to complete a local i2b2 query?
- HSSC i2b2
- UNC i2b2
- Wake Forest i2b2
- Duke i2b2- Page under development. For more information on i2b2 at Duke, please contact Nancey Hassell at nancy.hassell@duke.edu
What are the steps involved in requesting a dataset from the Carolinas Collaborative?
Otherwise, you or a member of your team may submit a data request form, which asks for details about your project, study team, and requested data. The data request and approval process is outlined below.
How does the IRB approval work in Carolinas Collaborative?
For more information, please go to our Contact Us page.